WELCOME TO SACFA

Cystic Fibrosis (CF), is an inherited genetic disease that affects a number of organs in the body, primarily the lungs and pancreas by clogging them with thick and sticky mucus.

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MARK YOUR CALENDAR

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Genes day – National
27 May 2020

94.7 Cycle 4 CF – Gauteng
15 Nov 2020

Coping during lockdown, when you have CF

How are you dealing with the pandemic? Do you find you are having up days and down days? We as people with Cystic Fibrosis are used to so much that the normal population are not. We wear our masks...

Being a mom of a CF

Our baby boy Tinus was having a hard time breathing, but doctors kept telling me he had a couple of creche viruses – even after I told them that he isn’t even IN a creche! I just assumed he...

What is the Cystic Fibrosis New Frontiers Committee?

The life expectancy of patients with cystic fibrosis (“CF”) has increased substantially over the past 20 years - this has been primarily due to successes in coordinated delivery of care,...

27 May 2020

Let’s create a lot of awareness and raise funds at the same time!!

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Gene Therapy, KB407, Seen to Restore CFTR Protein in Cell Studies

A potential gene therapy for cystic fibrosis, KB407, is able to induce the expression of normal CFTR protein in cell models of CF, its developer, Krystal Biotech, reports. Read more

REGISTRY PROJECT

Health professionals are teaming up with the SA cystic Fibrosis Association (SACFA) to establish a registry (or database) of people living with CF in SA. Please ask your doctor or CF clinic at your next checkup about how to sign up to the CF registry if you wish to participate. For more information click here

HELPFUL DOWNLOADS

Finding Out

A guide for parents and care-givers of children newly diagnosed with Cystic Fibrosis

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Consensus Document

The South African Cystic Fibrosis Consensus Document – Fifth Edition