WELCOME TO SACFA

Cystic Fibrosis (CF), is an inherited genetic disease that affects a number of organs in the body, primarily the lungs and pancreas by clogging them with thick and sticky mucus.

MARK YOUR CALENDAR

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Add to calendarECFS 2020 Digital Conference
24 – 25 Sep 2020 – Register here

Add to calendar6.5km Challenge – National
1 – 31 Oct 2020

Add to calendar94.7 Cycle 4 CF – Central Region
15 Nov 2020

My CF journey – Clare Emms

Over the last few years, so much has happened in the CF world and so much has happened in my own life. Dean and I, who met in High School, got married at the end of 2012 on the 31 December and we...
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A first chance at life after transplant- Fawn Rogers

Hello, I'm Fawn, Cystic Fibrosis owner, double lung transplant recipient and lover of life.    I was born in Zimbabwe but I was the only CF patient in the country and had to travel...
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Meet our newest contributors to the blog! Twins with a CF link!

Here's a bit of a different story on our website! We are so happy to welcome Nikki and Jay as blog contributors! Read more to find out about their connection to CF! Jay's post on nutrition is...
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Virtual 6.5km Challenge

1-31 October 2020

Click here to buy your ticket!

 

 

 

Research May Explain Why Different CF Bacteria Infect at Certain Ages

 

New research unveils why the bacteria Pseudomonas aeruginosa cause sustained infections in younger cystic fibrosis (CF) patients, while the bacteria Burkholderia cepacia complex infects patients as teenagers and adults.

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COVID-19 Guidelines

 

Click here to view

REGISTRY PROJECT

Health professionals are teaming up with the SA cystic Fibrosis Association (SACFA) to establish a registry (or database) of people living with CF in SA. Please ask your doctor or CF clinic at your next checkup about how to sign up to the CF registry if you wish to participate. For more information click here

HELPFUL DOWNLOADS

updated-stampCovid-19 Guidelines

 

These guidelines/FAQ’s regarding CF treatment during COVID-19 have been issued on 26 May 2020 by our SA Medical & Scientific Advisory Committee (MSAC). View it here

updated-stampFinding
Out

 

A guide for parents and care-givers of children newly diagnosed with Cystic Fibrosis

updated-stampConsensus Document

 

The South African Cystic Fibrosis Consensus Document – Fifth Edition

SPONSORS

COVID-19 Portal