WELCOME TO SACFA

Cystic Fibrosis (CF), is an inherited genetic disease that affects a number of organs in the body, primarily the lungs and pancreas by clogging them with thick and sticky mucus.

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Add to calendarCycle4CF Challenge – Gauteng
1 – 30 Nov 2020

Skuldgevoelens ry jou bloots – CF ma se perspektief

Die dag toe my tweeling gebore was, was die dag wat ‘n nuwe vlak, vorm en diepte van liefde ook gebore was. Niemand het my voorberei hoe baie moederskap my sal verander nie. Daarmee saam het...
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CrossFit changed my life! – Louise Coney’s CF story

Where my story began I was diagnosed with Cystic Fibrosis at birth when I was born with a meconium Ileus, with the delta F508 mutation. My parents were told I would live till I was 7 years...
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Foods To Feed Your Face With- Tips from a post-transplant CF patient

As a CF who has always struggled with maintaining weight (even post transplant) I know my way around a kitchen and food aisle better than most. One of the biggest issues with having to eat SO MUCH...
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Cycle4CF Virtual Challenge

November 2020

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Research May Explain Why Different CF Bacteria Infect at Certain Ages

 

New research unveils why the bacteria Pseudomonas aeruginosa cause sustained infections in younger cystic fibrosis (CF) patients, while the bacteria Burkholderia cepacia complex infects patients as teenagers and adults.

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COVID-19 Guidelines

 

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HELPFUL DOWNLOADS

updated-stampCovid-19 Guidelines

 

These guidelines/FAQ’s regarding CF treatment during COVID-19 have been issued on 26 May 2020 by our SA Medical & Scientific Advisory Committee (MSAC). View it here

updated-stampFinding
Out

 

A guide for parents and care-givers of children newly diagnosed with Cystic Fibrosis

updated-stampConsensus Document

 

The South African Cystic Fibrosis Consensus Document – Fifth Edition

REGISTRY PROJECT

Health professionals are teaming up with the SA cystic Fibrosis Association (SACFA) to establish a registry (or database) of people living with CF in SA. Please ask your doctor or CF clinic at your next checkup about how to sign up to the CF registry if you wish to participate. For more information click here

SPONSORS

COVID-19 Portal