WELCOME TO SACFA

Cystic Fibrosis (CF), is an inherited genetic disease that affects a number of organs in the body, primarily the lungs and pancreas by clogging them with thick and sticky mucus.

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Add to calendar94.7 Cycle 4 CF – Gauteng
15 Nov 2020

My CF journey – Clare Emms

Over the last few years, so much has happened in the CF world and so much has happened in my own life. Dean and I, who met in High School, got married at the end of 2012 on the 31 December and we...
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Skuldgevoelens ry jou bloots – CF ma se perspektief

Die dag toe my tweeling gebore was, was die dag wat ‘n nuwe vlak, vorm en diepte van liefde ook gebore was. Niemand het my voorberei hoe baie moederskap my sal verander nie. Daarmee saam het...
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Being a mom of a CF

Our baby boy Tinus was having a hard time breathing, but doctors kept telling me he had a couple of creche viruses – even after I told them that he isn’t even IN a creche! I just assumed he...
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COVID-19 Guidelines

 

 

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Gene Therapy, KB407, Seen to Restore CFTR Protein in Cell Studies

A potential gene therapy for cystic fibrosis, KB407, is able to induce the expression of normal CFTR protein in cell models of CF, its developer, Krystal Biotech, reports. Read more

 

REGISTRY PROJECT

Health professionals are teaming up with the SA cystic Fibrosis Association (SACFA) to establish a registry (or database) of people living with CF in SA. Please ask your doctor or CF clinic at your next checkup about how to sign up to the CF registry if you wish to participate. For more information click here

HELPFUL DOWNLOADS

updated-stampCovid-19 Guidelines

 

These guidelines/FAQ’s regarding CF treatment during COVID-19 have been issued on 26 May 2020 by our SA Medical & Scientific Advisory Committee (MSAC). View it here

updated-stampFinding
Out

 

A guide for parents and care-givers of children newly diagnosed with Cystic Fibrosis

updated-stampConsensus Document

 

The South African Cystic Fibrosis Consensus Document – Fifth Edition

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