WELCOME TO SACFA

Cystic Fibrosis (CF), is an inherited genetic disease that affects a number of organs in the body, primarily the lungs and pancreas by clogging them with thick and sticky mucus.

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Add to calendarCycle4CF Challenge – Gauteng
1 – 30 Nov 2020

Announcement of Closure of Adult CF Clinic at Charlotte Maxeke Hospital

The Joburg Adult CF Clinic at CMJAH has provided a high standard of treatment for around 40-60 adult state patients over a period of 17 years. The doctors have been funded by the SA Cystic Fibrosis...
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What support is out there for the CF Community in South Africa?

Our SACFA Social Media Group is growing and through our surveys and interactions with others, we realised that some people aren’t aware of the support that is out there for the CF Community. The...
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Coping during lockdown, when you have CF

How are you dealing with the pandemic? Do you find you are having up days and down days? We as people with Cystic Fibrosis are used to so much that the normal population are not. We wear our masks...
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Cycle4CF Virtual Challenge

November 2020

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Research May Explain Why Different CF Bacteria Infect at Certain Ages

 

New research unveils why the bacteria Pseudomonas aeruginosa cause sustained infections in younger cystic fibrosis (CF) patients, while the bacteria Burkholderia cepacia complex infects patients as teenagers and adults.

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COVID-19 Guidelines

 

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HELPFUL DOWNLOADS

updated-stampCovid-19 Guidelines

 

These guidelines/FAQ’s regarding CF treatment during COVID-19 have been issued on 26 May 2020 by our SA Medical & Scientific Advisory Committee (MSAC). View it here

updated-stampFinding
Out

 

A guide for parents and care-givers of children newly diagnosed with Cystic Fibrosis

updated-stampConsensus Document

 

The South African Cystic Fibrosis Consensus Document – Fifth Edition

REGISTRY PROJECT

Health professionals are teaming up with the SA cystic Fibrosis Association (SACFA) to establish a registry (or database) of people living with CF in SA. Please ask your doctor or CF clinic at your next checkup about how to sign up to the CF registry if you wish to participate. For more information click here

Summary report – 2018

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Full report – 2018

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