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Cystic Fibrosis (CF), is an inherited genetic disease that affects a number of organs in the body, primarily the lungs and pancreas by clogging them with thick and sticky mucus.

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Add to calendar94.7 Cycle 4 CF – Gauteng
15 Nov 2020

Foods To Feed Your Face With- Tips from a post-transplant CF patient

As a CF who has always struggled with maintaining weight (even post transplant) I know my way around a kitchen and food aisle better than most. One of the biggest issues with having to eat SO MUCH...
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17 year old CF life during the pandemic- from a Mom’s perspective

91 days... does not sound too long....   But what if you are 17 years old, very social, love life, friends and experiences... and yet, you may not have any of those.   So let's let the...
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A first chance at life after transplant- Fawn Rogers

Hello, I'm Fawn, Cystic Fibrosis owner, double lung transplant recipient and lover of life.    I was born in Zimbabwe but I was the only CF patient in the country and had to travel...
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COVID-19 Guidelines

 

 

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Gene Therapy, KB407, Seen to Restore CFTR Protein in Cell Studies

A potential gene therapy for cystic fibrosis, KB407, is able to induce the expression of normal CFTR protein in cell models of CF, its developer, Krystal Biotech, reports. Read more

 

REGISTRY PROJECT

Health professionals are teaming up with the SA cystic Fibrosis Association (SACFA) to establish a registry (or database) of people living with CF in SA. Please ask your doctor or CF clinic at your next checkup about how to sign up to the CF registry if you wish to participate. For more information click here

HELPFUL DOWNLOADS

updated-stampCovid-19 Guidelines

 

These guidelines/FAQ’s regarding CF treatment during COVID-19 have been issued on 26 May 2020 by our SA Medical & Scientific Advisory Committee (MSAC). View it here

updated-stampFinding
Out

 

A guide for parents and care-givers of children newly diagnosed with Cystic Fibrosis

updated-stampConsensus Document

 

The South African Cystic Fibrosis Consensus Document – Fifth Edition

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COVID-19 Portal