WELCOME TO SACFA
Cystic Fibrosis (CF), is an inherited genetic disease that affects a number of organs in the body, primarily the lungs and pancreas by clogging them with thick and sticky mucus.
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94.7 Cycle 4 CF – Gauteng
15 Nov 2020
Gene Therapy, KB407, Seen to Restore CFTR Protein in Cell Studies
A potential gene therapy for cystic fibrosis, KB407, is able to induce the expression of normal CFTR protein in cell models of CF, its developer, Krystal Biotech, reports. Read more
REGISTRY PROJECT
Health professionals are teaming up with the SA cystic Fibrosis Association (SACFA) to establish a registry (or database) of people living with CF in SA. Please ask your doctor or CF clinic at your next checkup about how to sign up to the CF registry if you wish to participate. For more information click here
HELPFUL DOWNLOADS
Covid-19 Guidelines
These guidelines/FAQ’s regarding CF treatment during COVID-19 have been issued on 26 May 2020 by our SA Medical & Scientific Advisory Committee (MSAC). View it here
Finding
Out
A guide for parents and care-givers of children newly diagnosed with Cystic Fibrosis
Consensus Document
The South African Cystic Fibrosis Consensus Document – Fifth Edition
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