A first chance at life after transplant- Fawn Rogers

A first chance at life after transplant- Fawn Rogers

Hello, I'm Fawn, Cystic Fibrosis owner, double lung transplant recipient and lover of life.    I was born in Zimbabwe but I was the only CF patient in the country and had to travel often to see specialists and get my meds from SA. I eventually relocated...

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CrossFit changed my life! – Louise Coney’s CF story

CrossFit changed my life! – Louise Coney’s CF story

Where my story began I was diagnosed with Cystic Fibrosis at birth when I was born with a meconium Ileus, with the delta F508 mutation. My parents were told I would live till I was 7 years old….both being Engineers, and determined individuals, they decided to...

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Exercise and CF

Exercise and CF

Regular exercise plays a very important role in maintaining a healthy lifestyle for both CF patients as well as healthy individuals. A regular exercise routine helps an individual to maintain a healthy body weight, reduce their risk of developing comorbidities such as...

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Guilt ridden CF mom

Guilt ridden CF mom

Click The day my twins were born, something else was born too. It is a different kind of love. It is deeper, and it feels different. It is as if my heart is running outside my chest. Nobody could ever prepare me for how much motherhood will change me. But with that,...

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Skuldgevoelens ry jou bloots – CF ma se perspektief

Skuldgevoelens ry jou bloots – CF ma se perspektief

Die dag toe my tweeling gebore was, was die dag wat ‘n nuwe vlak, vorm en diepte van liefde ook gebore was. Niemand het my voorberei hoe baie moederskap my sal verander nie. Daarmee saam het nog ‘n gevoel gekom… skuldgevoelens oor amper alles. Dis...

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Nutrition in CF- Maintaining weight and diet tips for CFRD

Nutrition in CF- Maintaining weight and diet tips for CFRD

Eating well, and maintaining a healthy body weight are vital for individuals with Cystic Fibrosis (CF). A good nutritional status has been directly linked to improved lung function, reduced chest infections and ultimately, improved survival rates. However, as many CF...

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