What is the Cystic Fibrosis New Frontiers Committee?

What is the Cystic Fibrosis New Frontiers Committee?

The life expectancy of patients with cystic fibrosis (“CF”) has increased substantially over the past 20 years - this has been primarily due to successes in coordinated delivery of care, and advances in CF treatment. This treatment, however, only focuses...

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Coping during lockdown, when you have CF

Coping during lockdown, when you have CF

How are you dealing with the pandemic? Do you find you are having up days and down days? We as people with Cystic Fibrosis are used to so much that the normal population are not. We wear our masks for hospital visits, we wash our hands and avoid sick people as a norm...

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My CF journey – Clare Emms

My CF journey – Clare Emms

Over the last few years, so much has happened in the CF world and so much has happened in my own life. Dean and I, who met in High School, got married at the end of 2012 on the 31 December and we celebrated our wedding while seeing in the New Year with all our closest...

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Being a mom of a CF

Our baby boy Tinus was having a hard time breathing, but doctors kept telling me he had a couple of creche viruses – even after I told them that he isn’t even IN a creche! I just assumed he unfortunately inherited asthma from his daddy. Today I really wish that he...

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Living with a child with CF (Layla-Rose)

Having been asked to write about this was a difficult thing to know where to start so let me start at the beginning. Every mom and parent dreams of a perfect happy little baby and see a bright happy future with them. Initially when you hear those word 'cystic...

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Personal story by Alice Vogt

Personal story by Alice Vogt

Alice Vogt (previously Vosloo) update – 10 years later I submitted my story to this website 10 years ago (see below), 10 months after my first bi-lateral lung transplant. The past decade has been absolutely brilliant, full of new things, sometimes scary and uncertain…...

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