The CF Registry – Annual Report

The CF Registry – Annual Report

What is the registry for? Publishing of our first annual CF registry report for South Africa is testimony to the commitment of all CF doctors and CF families in our country, to promote the welfare of all our patients. The benefits of the registry are not always fully...

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Ndumiso’s Story (part 2)

Ndumiso’s Story (part 2)

(Continued from part 1) Work and social life As we all know CF is a very challenging condition it needs someone who is financially stable. It affects you mentally and emotionally and it needs you to be strong and accept it and learn to live with it. I struggled a lot-...

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CF New Frontiers Project : Vertex Update

CF New Frontiers Project : Vertex Update

Members of the CF New Frontiers Committee (CFNFC) engaged in a meeting with representatives from Vertex Pharmaceuticals on 16 September 2020. Representing South Africa on a national level, the CFNFC attendees consisted of doctors specializing in paediatric and adult...

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Ndumiso’s Story (part 1 of 2)

Ndumiso’s Story (part 1 of 2)

Ndumiso is from Zimbabwe, he now lives in Johannesburg, and is the first black CF person to join the CF Association. Ndumiso's story is very enlightening and shows his strength and bravery through adversity. He has been brave enough to write in English, which is not...

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A first chance at life after transplant- Fawn Rogers

A first chance at life after transplant- Fawn Rogers

Hello, I'm Fawn, Cystic Fibrosis owner, double lung transplant recipient and lover of life.    I was born in Zimbabwe but I was the only CF patient in the country and had to travel often to see specialists and get my meds from SA. I eventually relocated...

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CrossFit changed my life! – Louise Coney’s CF story

CrossFit changed my life! – Louise Coney’s CF story

Where my story began I was diagnosed with Cystic Fibrosis at birth when I was born with a meconium Ileus, with the delta F508 mutation. My parents were told I would live till I was 7 years old….both being Engineers, and determined individuals, they decided to...

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Exercise and CF

Exercise and CF

Regular exercise plays a very important role in maintaining a healthy lifestyle for both CF patients as well as healthy individuals. A regular exercise routine helps an individual to maintain a healthy body weight, reduce their risk of developing comorbidities such as...

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