What is the Cystic Fibrosis New Frontiers Committee?
The life expectancy of patients with cystic fibrosis (“CF”) has increased substantially over the past 20 years - this has been primarily due to successes in coordinated delivery of care, and advances in CF treatment. This treatment, however, only focuses on reducing...
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Coping during lockdown, when you have CF
How are you dealing with the pandemic? Do you find you are having up days and down days? We as people with Cystic Fibrosis are used to so much that the normal population are not. We wear our masks for hospital visits, we wash our hands and avoid sick people as a norm...
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What support is out there for the CF Community in South Africa?
Our SACFA Social Media Group is growing and through our surveys and interactions with others, we realised that some people aren’t aware of the support that is out there for the CF Community. The Association is made up of 3 main bodies; Gauteng, CT and KZN regions. We...
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My CF journey – Clare Emms
Over the last few years, so much has happened in the CF world and so much has happened in my own life. Dean and I, who met in High School, got married at the end of 2012 on the 31 December and we celebrated our wedding while seeing in the New Year with all our closest...
read moreBeing a mom of a CF
Our baby boy Tinus was having a hard time breathing, but doctors kept telling me he had a couple of creche viruses – even after I told them that he isn’t even IN a creche! I just assumed he unfortunately inherited asthma from his daddy. Today I really wish that he...
read moreLiving with a child with CF (Layla-Rose)
Having been asked to write about this was a difficult thing to know where to start so let me start at the beginning. Every mom and parent dreams of a perfect happy little baby and see a bright happy future with them. Initially when you hear those word 'cystic...
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Personal story by Alice Vogt
Alice Vogt (previously Vosloo) update – 10 years later I submitted my story to this website 10 years ago (see below), 10 months after my first bi-lateral lung transplant. The past decade has been absolutely brilliant, full of new things, sometimes scary and uncertain…...
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