The CF Registry – Annual Report

The CF Registry – Annual Report

What is the registry for? Publishing of our first annual CF registry report for South Africa is testimony to the commitment of all CF doctors and CF families in our country, to promote the welfare of all our patients. The benefits of the registry are not always fully...

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CF New Frontiers Project : Vertex Update

CF New Frontiers Project : Vertex Update

Members of the CF New Frontiers Committee (CFNFC) engaged in a meeting with representatives from Vertex Pharmaceuticals on 16 September 2020. Representing South Africa on a national level, the CFNFC attendees consisted of doctors specializing in paediatric and adult...

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What is the Cystic Fibrosis New Frontiers Committee?

What is the Cystic Fibrosis New Frontiers Committee?

The life expectancy of patients with cystic fibrosis (“CF”) has increased substantially over the past 20 years – this has been primarily due to successes in coordinated delivery of care, and advances in CF treatment. This treatment, however, only focuses on...

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