CFNFC is the SACFA subcommittee tasked with facilitating access to affordable CF drugs for patients in South Africa, with an initial focus on CFTR modulators such as Trikafta. Over the past few months of research and legal consultation, the committee has formulated a...
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Regular exercise plays a very important role in maintaining a healthy lifestyle for both CF patients as well as healthy individuals. A regular exercise routine helps an individual to maintain a healthy body weight, reduce their risk of developing comorbidities such as...
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Click The day my twins were born, something else was born too. It is a different kind of love. It is deeper, and it feels different. It is as if my heart is running outside my chest. Nobody could ever prepare me for how much motherhood will change me. But with that,...
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Die dag toe my tweeling gebore was, was die dag wat ‘n nuwe vlak, vorm en diepte van liefde ook gebore was. Niemand het my voorberei hoe baie moederskap my sal verander nie. Daarmee saam het nog ‘n gevoel gekom… skuldgevoelens oor amper alles. Dis...
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The life expectancy of patients with cystic fibrosis (“CF”) has increased substantially over the past 20 years – this has been primarily due to successes in coordinated delivery of care, and advances in CF treatment. This treatment, however, only focuses on...
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